I know I'm having a bad flare-up now. In my post a couple of days ago I was talking about having numbness in my arms and pain in my nails and such. Today I had my treatment and my diastolic blood pressure (BP) was significantly low....during the 7 hours I was receiving my treatment - the nurse checks my BP every 30 mins and the average of my BP today was... 99/49 - 101/54 (my normal ranges 120/90), after my treatment it went up to 110/64..guess it knocked down some of the inflammation. I can't imagine what this number gets like when I sleep!!! No wonder my arms go numb...I'm not getting a sufficient amount of oxygen and blood....no wonder I've fainted on several occassions!! Hey, it could be much worse..I'm doing much better with these treatments!!
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Dang Blast! That's scary! So does this happen often for you? Your BP down low, I mean?
Does that mean you get really tired easily?
Yes it does. It explains a lot. On several occassion I get dizzy and feel as though I'm going to faint. Complete exhaustion. It happens when I'm having a bad flare-up. It's pretty scary crap. I scared the crap out of my boss one time...I had this happen in his doorway while he was on the phone...fortunately some how he recognized I was about to faint and he quickly set down the phone and ran over and caught me. I didn't pass out but I was completely exhausted. My neighboor wasn't so lucky. I was at her house one evening and I was leaned over her counter top...fortunate again! I collapsed and was out for a while. They called an ambulance and when they got there my diastolic pressure was really really low. I can't imagine what it was when I was passed out. They wanted me to go by ambulance to the ER but because I know this had happened before I knew it was my illenss. However, when it happened at work...we didn't know what was going on then. It's pretty scary! Nothing you can do! You just have to pray! On the Behcets website I have read where several young Behcets patients have died in their sleep....I hope this is the way I get to go...If I have to go!!
Oh, and it also causes me to have confusion and memory problems. It causes a whole host of problems...not getting the proper oxygen and blood to your organs is bad!!
While, I was working, I would constantly be diagnosed with strep-throat (my boss would always question how an adult could constantly have strep...of course I would get defensive because I thought he was questioning the truth in me actually being sick..not realizing he was recognizing things I didn't) and I would have all types of symptoms occur. I would get totally exhausted sometimes at work and my boss would make comments to me. He recognized that I had something more going on than just strep throat and tiredness. He was the one that kept influencing me to digg with my mysterious health issues. He kept telling me there was something wrong with my immune system and I needed to figure it out. I'm glad I worked there, I may have not had the consistency in trying to figure out what was going on...if it wasn't for his comments.
As for your memory problems....
At least you have an excuse!
I forget EVERYTHING... and I have no excuse. Well, actually 6 kids is excuse for me. ha ha ha
Anyway, Zach has heart problems. He has clefts in the flaps in his heart... the flaps that switch oxygenated blood to non oxygenated blood... Anyway, it won't cause problems till his body has fully matured. But when that day comes I will be scared all the time! Scary stuff. His immune system is shot to hell too! He's always sick. ALWAYS. I feel so bad for him!
You poor poor pooooooor thing! To be exhausted all the time like that is awful. I have been like that before. But not anymore thank goodness. It wipes you out so that you can't do anything. I'm so sorry that you have to live with something so constant and exhausting. At least you know what it is though. That's a relief.
I'll have to read about Behcets. Do you have a website I can go to?
Let me kmow!
Love you!
DUGH! I just saw the website on your blog. OK - I'm blind!
Poor Zach! That is very scary! Give him lots of kisses for me!!
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