Never A Dull Moment With Behcets

I've been posting this week on the effects Behcet's has on me because I've had a very hard month and since these post are ultimately for my daughter, Brittnee, I feel it's very vital for me to share details. I hope people aren't put-off by this. With life you must know the good, bad and the ugly...it's reality! 

Keeping a medical diary is important when you struggle with a chronic illness..if you're not doing that you might want to start. In fact, if you're having medical problems and haven't been diagnosed yet; you may want to start your own "Medical Blog" for your doctor or doctors and give them your blog link. It's a wonderful tool to help with the process of your diagnosis.

The Good

I know I promised  a 5th generation recipe this week, I promise I plan on sharing that with you today. But first I want to finish filling you in on what happened to me this week with my health.

The Bad

You all know that a couple of weeks ago, I started off with being unable to walk down my stairs one morning and had to go get steroid shots. Then the following couple of days my legs started having bad pains and muscle spasms, followed by severe bruising, ulcers on the shins and mouth and now .....

The Ugly

On Friday, I had to go shopping for baby shower gifts and a gift for another couple that just had a baby. When I was out shopping, the items I was holding felt like I was carrying 400 lbs. The items were clothes...they shouldn't have felt that way at all... but they did. I then became exhausted and very, very confused. Unable to make a decision about what to buy...I now realize why last year when I went Christmas shopping I had such a difficult time trying to buy for people because I was more sick last year than this year with the neurological aspect of Behcets. I knew I had to get home right away, so I stopped shopping and just bought what I had in my hand that very moment, so I could get home and lie down. I went to sleep and slept till I had to get Brittnee at 4, so I slept 3 hours and it still wasn't enough. When I woke up my arms hurt so bad, they felt much like my shins did...pain, heaviness and I won't post another photo, but I have bruising on my left arm. This wasn't the worst of the day. 

On Fridays Brittnee usually goes out with her gal pals and I drive them but I couldn't because it hurt to lift my arms, Mike had to take them and while he was out he picked us up Taco Bell to eat (I hate to admit I eat there...especially now). When he brought it home, I was still lying down on the sofa... trying to feel better.  I felt so weak, I couldn't pick myself up off the sofa to go into the kitchen to eat. So, he brought me the food in the living room and I set up to eat. I was eating  a  tastado when the ugly reached out to choke me. The chip from the tastado became lodged in my windpipe halfway down (the muscles in my throat stopped working too???). It was the most painful scariest feeling I have ever gone through. I have fainted several times with this disease but I have no recall of the experiences so I don't fear that but now I'm afraid of eating. I waited about 3 minutes and the chip wasn't going anywhere. All I could think about was it turning and becoming lodged where I had no air or cutting my throat and bleeding to death. I told Mike to call 911 and he was a bit panicked, but then he quickly popped into rare mode and said "Jenece, I can get you to the ER much faster than the ambulance can get here. Lets get in the truck and I will drive you to the hospital that's only ten minutes away."  Of course, I wasn't sure if this was a wise idea because I knew what could happen and that feeling of something being stuck in your windpipe is not very pleasant. I thought I was going to die or I was going to have to undergo a major surgery...which I'm sure they could have given me something that would have dissolved it, but when your in distress mode you don't think clearly. I had no idea what was going to happen to me but I sure didn't fancy (I know I'm not British but I'm using the word as an opposition to the ugliness I was experiencing) the idea that "Taco Bell" had  full control of my life!

Upon arrival at the ER, the chip finally passed...it was stuck 10 to 15 minutes too long! Thank GOD! I cried for 30 minutes...I guess the fear and the relief that I was going to make it through this ordeal overcome me and I lost it, crying...I think that probably scared Mike more than the whole "Ugly Taco Bell"  incident did. 

I love little dogs, but I will no longer admire that cute little TACO BELL DOG again! 

I have e-mailed my doctor to tell him what happened and he suggested I go see the neurologist immediately...  so I'm off to my next big lesson and adventure in learning all these big named doctors and how they treat people; neurologist, urologist, nephrologist...etc.